BIG QUESTION!- How do we get the meds to India?
While we have Tobi , hypertonic saline, and thankfully Creon available in India, better maintenance drugs like Pulmozyme , Kalydeco are yet to hit the Indian shores officially . Although Pulmozyme is available in high end drug stores at a ridiculous cost, it is mostly out of reach. Roche, the pharma who markets dornase alfa(pulmozyme) confirmed that they do not market in India because of poor demand and were quite fine with importing it in bulk. But twist of the tale is that pulmozyme months pack is expensive enough and to get it in bulk would be a financial suicide. How do we get the life saving medicines to India? The only hope is to work together towards the issue.